A little girl named Avery Lynn Canahuati from Texas is diagnosed with an incurable disease called Spinal Muscular Atrophy (SMA). Avery's parents have started a blog (written from Avery's point of view) about her bucket list - all the things she would like to do/has done in her life.
On her blog, she writes, "I have already
lost the ability to move my legs and eventually I will lose the ability
to move my arms and my head. When that happens it will be difficult and
eventually impossible for my body to pump air through my lungs which is
why most babies, like me, who are diagnosed with SMA type 1 have a life
expectancy of less than two years of age."
You can learn more about Avery and SMA at:
Avery's Blog - http://averycan.blogspot.ca
Avery's Twitter - http://twitter.com/AveryBucketList
Avery's Facebook - http://www.facebook.com/AverysBucketList
No comments:
Post a Comment